LEADER 00000cam a2200661Ii 4500 001 ocn945095843 003 OCoLC 005 20190705070443.2 006 m o d 007 cr cnu---unuuu 008 160318s2016 nyu ob 001 0 eng d 019 948591717 020 9781479855377|qelectronic book 020 1479855375|qelectronic book 020 |z9781479800117 020 |z1479800112 020 |z9781479889808 020 |z1479889806 035 (OCoLC)945095843|z(OCoLC)948591717 037 22573/ctt180n0sq|bJSTOR 040 N$T|beng|erda|epn|cN$T|dN$T|dYDXCP|dEBLCP|dJSTOR|dTEFOD |dUAB|dUPM|dIOG|dSNK|dOCLCQ|dCNMTR 049 RIDW 050 4 RC523|b.B396 2016eb 072 7 HEA|x039000|2bisacsh 072 7 MED|x014000|2bisacsh 072 7 MED|x022000|2bisacsh 072 7 MED|x112000|2bisacsh 072 7 MED|x045000|2bisacsh 082 04 616.8/31|223 090 RC523|b.B396 2016eb 100 1 Beard, Renée L.,|0https://id.loc.gov/authorities/names/ n2015065690|eauthor. 245 10 Living with Alzheimer's :|bmanaging memory loss, identity, and illness /|cRenée L. Beard. 264 1 New York :|bNew York University Press,|c[2016] 264 4 |c©2016 300 1 online resource 336 text|btxt|2rdacontent 337 computer|bc|2rdamedia 338 online resource|bcr|2rdacarrier 340 |gpolychrome|2rdacc 347 text file|2rdaft 504 Includes bibliographical references and index. 505 00 |g1.|tMeaning of Memory Loss: Illness, Identity, and Biography --|g2.|tHistory and Technoscience: From Senility to Alzheimer's --|g3.|tConstructing Facts in Clinical Practice: Interpreting, Diagnosing, and Treating Memory Loss --|g4.|tBeing Cognitively Evaluated: Learning to Medicalize Forgetfulness --|g5.|tHearing "the A Word": The Road to Becoming an Alzheimer's Patient --|g6.|tEveryday Life with Diagnosis: The New Normal --|g7.|tAdvocating Alzheimer's: Biomedical Structures and Social Movements -- |g8.|tForget Me Not: The Future of Alzheimer's. 520 News of Alzheimer's disease is constantly in the headlines. Every day we hear heart-wrenching stories of people caring for a loved one who has become a shell of their former self, of projections about rising incidence rates, and of cures that are just around the corner. However, we don't see or hear from the people who actually have the disease. In Living with Alzheimer's, Renée L. Beard argues that the exclusively negative portrayals of Alzheimer's are grossly inaccurate. To understand what life with memory loss is really like, Beard draws on intensive observations of nearly 100 seniors undergoing cognitive evaluation, as well as post-diagnosis interviews with individuals experiencing late-in-life forgetfulness. Since we all forget sometimes, seniors with an Alzheimer's diagnosis ultimately need to be socialized into medicalized interpretations of their forgetfulness. In daily life, people with the disease are forced to manage stigma and the presumption of incompetence on top of the actual symptoms of their ailment. The well-meaning public, and not their dementia, becomes the major barrier to a happy life for those affected. Beard also examines how these perceptions affect treatment for Alzheimer's. Interviews with clinicians and staff from the Alzheimer's Association reveal that despite the best of intentions, pejorative framings of life with dementia fuel both clinical practice and advocacy efforts. These professionals perpetuate narratives about "self-loss," "impending cures," and the economic and emotional "burden" to families and society even if they do not personally believe them. Yet, Beard also concludes that in spite of these trends, most of the diagnosed individuals in her study achieve a graceful balance between accepting the medical label and resisting the social stigma that accompanies it. In stark contrast to the messages we receive, this book provides an unprecedented view into the ways that people with early Alzheimer's actively and deliberately navigate their lives. 588 0 Print version record. 590 eBooks on EBSCOhost|bEBSCO eBook Subscription Academic Collection - North America 650 0 Alzheimer's disease.|0https://id.loc.gov/authorities/ subjects/sh85004080 650 0 Alzheimer's disease|xPatients|xCare.|0https://id.loc.gov/ authorities/subjects/sh91003917 650 7 Alzheimer's disease.|2fast|0https://id.worldcat.org/fast/ 806532 650 7 Alzheimer's disease|xPatients|xCare.|2fast|0https:// id.worldcat.org/fast/806558 655 4 Electronic books. 776 08 |iPrint version:|aBeard, Renée L.|tLiving with Alzheimer's.|dNew York : New York University Press, [2016] |z9781479800117|w(DLC) 2015043570|w(OCoLC)926743416 856 40 |uhttps://rider.idm.oclc.org/login?url=http:// search.ebscohost.com/login.aspx?direct=true&scope=site& db=nlebk&AN=1084135|zOnline eBook via EBSCO. Access restricted to current Rider University students, faculty, and staff. 856 42 |3Instructions for reading/downloading the EBSCO version of this eBook|uhttp://guides.rider.edu/ebooks/ebsco 901 MARCIVE 20231220 948 |d20190709|cEBSCO|tEBSCOebooksacademic NEW 7-5-19 5915 |lridw 994 92|bRID