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Title Achieving justice in genomic translation : re-thinking the pathway to benefit / edited by Wylie Burke [and others].

Publication Info. Oxford : Oxford University Press, USA, 2011.

Item Status

Description 1 online resource (223 pages)
text file
Summary This book explores implicit choices made by researchers, policy makers, and funders regarding who benefits from society's investment in health research. The authors focus specifically on genetic research and examine whether such research tends to reduce.
Contents Cover; Contents; 1. Making Good on the Promise of Genetics: Justice in Translational Science; 2. The Social, Political, and Economic Underpinnings of Biomedical Research and Development: A Formidable Status Quo; 3. The Input-Output Problem: Whose DNA Do We Study, and Why Does It Matter?; 4. The Autism Genetic Resource Exchange: Changing Pace, Priorities, and Roles in Discovery Science; Commentary on the Discovery Phase of Research; 5. Early Assessment of Translational Opportunities; 6. The Power of Knowledge: How Carrier and Prenatal Screening Altered the Clinical Goals of Genetic Testing.
Bibliography Includes bibliographical references and index.
Local Note eBooks on EBSCOhost EBSCO eBook Subscription Academic Collection - North America
Subject Human genetics -- Research -- Moral and ethical aspects.
Human genetics -- Research -- Moral and ethical aspects.
Human genetics.
Genomics -- Research -- Moral and ethical aspects.
Genomics.
Research.
Genetic screening -- Moral and ethical aspects.
Genetic screening -- Moral and ethical aspects.
Genre/Form Electronic books.
Added Author Burke, Wylie.
Edwards, Kelly A.
Goering, Sara.
Other Form: Print version: Burke, Wylie. Achieving Justice in Genomic Translation : Re-Thinking the Pathway to Benefit. Oxford : Oxford University Press, USA, ©2011 9780195390384
ISBN 9780199909742 (electronic book)
0199909741 (electronic book)
1283427931
9781283427937
9780195390384 (hardback alkaline paper)