| Description |
1 online resource (xi, 272 pages). |
| Physical Medium |
polychrome |
| Description |
text file |
| Series |
Critical issues in health and medicine
|
|
Critical issues in health and medicine.
|
| Bibliography |
Includes bibliographical references and index. |
| Contents |
Saving babies, changing lives -- Diagnostic odysseys, old and new : how newborn screening transforms parents, encounters with disease -- Specters in the room : parenting in the shadow of cystic fibrosis -- Encounters with expertise : parents and health care professionals -- A house on fire : how private experiences ignite public voices -- Brave new worlds : can they be seen in a drop of blood? |
| Summary |
Testing Baby is the first book to draw on parents & rsquo; experiences with newborn screening in order to examine its far-reaching sociological consequences. Newborn screening occurs almost always without parents & rsquo; consent and often without their knowledge or understanding, yet it has the power to alter such things as family dynamics at the household level, the context of parenting, the way we manage disease identity, and how parents & rsquo; interests are understood and solicited in policy debates. Rachel Grob & rsquo;s cautionary tale explores the powerful ways that parents & rsquo; narratives. |
| Access |
Use copy Restrictions unspecified MiAaHDL |
| Reproduction |
Electronic reproduction. [S.l.] : HathiTrust Digital Library, 2011. MiAaHDL |
| System Details |
Master and use copy. Digital master created according to Benchmark for Faithful Digital Reproductions of Monographs and Serials, Version 1. Digital Library Federation, December 2002. http://purl.oclc.org/DLF/benchrepro0212 MiAaHDL |
| Processing Action |
digitized 2011 HathiTrust Digital Library committed to preserve MiAaHDL |
| Local Note |
eBooks on EBSCOhost EBSCO eBook Subscription Academic Collection - North America |
| Subject |
Newborn infants -- Diseases -- Diagnosis.
|
|
Newborn infants -- Diseases -- Diagnosis. |
|
Medical screening.
|
|
Medical screening. |
|
Neonatal Screening. |
|
Infant, Newborn. |
|
Parents. |
|
Health Policy. |
|
United States. |
| Genre/Form |
Electronic books.
|
| Other Form: |
Print version: Grob, Rachel, 1966- Testing baby. New Brunswick, NJ : Rutgers University Press, ©2011 (DLC) 2010049959 |
| ISBN |
9780813552026 (electronic book) |
|
0813552028 (electronic book) |
|
0813551358 |
|
0813551366 |
|
9780813551357 |
|
9780813551364 |
|
