| Description |
1 online resource (viii, 211 pages) |
| Physical Medium |
polychrome |
| Description |
text file |
| Bibliography |
Includes bibliographical references and index. |
| Contents |
Introduction : public participation in genetic databases / Richard Tutton and Oonagh Corrigan -- Person, property and gift : exploring languages of tissue donation to biomedical research / Richard Tutton -- Blood donation for genetic research : what can we learn from donors' narratives? / Helen Busby -- Levels and styles of participation in genetic databases : a case study of the North Cumbria Community Genetics Project / Erica Haimes and Michael Whong-Barr -- Informed consent : the contradictory ethical safeguards in pharmacogenetics / Oonagh Corrigan -- Ambiguous gifts : public anxiety, informed consent and biobanks / Klaus Hoeyer -- Abandoning informed consent : the case of genetic research in population collections / Jane Kaye -- Children's participation in genetic epidemiology : consent and control / Emma Williamson [and others] -- 'Public consent' or 'scientific citizenship'? What counts as public participation in population-based DNA collections? / Sue Weldon -- Tissue collection and the pharmaceutical industry : investigating corporate biobanks / Graham Lewis. |
| Summary |
Genetic Databases offers a timely analysis of the underlying tensions, contradictions and limitations of the current regulatory frameworks for and policy debates about genetic databases. |
| Local Note |
eBooks on EBSCOhost EBSCO eBook Subscription Academic Collection - North America |
| Subject |
DNA.
|
|
DNA. |
|
Nucleotide sequence -- Databases.
|
|
Nucleotide sequence. |
| Genre/Form |
Databases.
|
| Subject |
Amino acid sequence -- Databases.
|
|
Amino acid sequence. |
|
Genetics -- Data processing.
|
|
Genetics -- Data processing. |
|
Genetics. |
|
Databases -- Citizen participation.
|
|
Databases. |
|
Political participation. |
|
Bioinformatics.
|
|
Bioinformatics. |
|
Medical ethics.
|
|
Medical ethics. |
| Genre/Form |
Electronic books.
|
|
Databases.
|
| Added Author |
Corrigan, Oonagh, 1957-
|
|
Tutton, Richard, 1972-
|
| Other Form: |
Print version: Genetic databases. London ; New York : Routledge, 2004 0415316790 0415316804 (DLC) 2003066779 (OCoLC)53324926 |
| ISBN |
0203577922 (electronic book) |
|
9780203577929 (electronic book) |
|
0415316790 |
|
0415316804 (paperback) |
|
