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Title Building data capacity for patient-centered outcomes research : priorities for the next decade / Committee on Building Data Capacity for Patient-Centered Outcomes Research: An Agenda for 2021 to 2030 ; Committee on National Statistics, Division of Behavioral and Social Sciences and Education, Board on Health Care Services, Health and Medicine Division ; Computer Science and Telecommunications Board, Division on Engineering and Physical Sciences.

Publication Info. Washington, DC : The National Academies Press, [2022]

Item Status

Description 1 online resource (1 PDF file (xiv, 353 pages)) : color illustrations.
Series A consensus study report of the National Academies of Sciences, Engineering, Medicine.
Consensus study report.
Bibliography Includes bibliographical references.
Summary The Office of the Assistant Secretary for Planning and Evaluation (ASPE), in partnership with other agencies and divisions of the United States Department of Health and Human Services, coordinates a portfolio of projects that build data capacity for conducting patient-centered outcomes research (PCOR). PCOR focuses on producing scientific evidence on the effectiveness of prevention and treatment options to inform the health care decisions of patients, families, and health care providers, taking into consideration the preferences, values, and questions patients face when making health care choices. ASPE asked the National Academies to appoint a consensus study committee to identify issues critical to the continued development of the data infrastructure for PCOR. Building Data Capacity for Patient-Centered Outcomes Research contains findings and conclusions in the areas that could benefit from being prioritized as part of ASPE's work, and offers input on strengthening the overall framework for building the data infrastructure over the coming years. The committee authoring this report also issued three interim reports, which summarized discussions from three workshops, and are included as appendices in the final report.
Funding This activity was supported by a contract between the National Academy of Sciences and the U.S. Department of Health and Human Services (award # HHSP233201400020B/75P00120F37102). Any opinions, findings, conclusions, or recommendations expressed in this publication do not necessarily reflect the views of any organization or agency that provided support for the project.
Local Note eBooks on EBSCOhost EBSCO eBook Subscription Academic Collection - North America
Subject Patient-centered health care -- Research -- Data processing.
United States -- Medical care -- 21st century.
Outcome assessment (Medical care)
Patient-centered health care.
Data mining.
Medical care
United States
Chronological Term 2000-2099
Added Author National Academies of Sciences, Engineering, and Medicine (U.S.). Committee on Building Data Capacity for Patient-Centered Outcomes Research: An Agenda for 2021 to 2030, issuing body.
National Academies of Sciences, Engineering, and Medicine (U.S.). Committee on National Statistics, issuing body.
National Academies of Sciences, Engineering, and Medicine (U.S.). Computer Science and Telecommunications Board, issuing body.
National Academies of Sciences, Engineering, and Medicine (U.S.). Division of Behavioral and Social Sciences and Education, issuing body.
Other Form: Print version: 9780309287111 0309287111 (OCoLC)1327992367
ISBN 030928712X (electronic bk)
9780309287128 (electronic bk.)
9780309287111
0309287111