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Corporate Author United States. Congress. Senate. Committee on Health, Education, Labor, and Pensions. Subcommittee on Children and Families, author.

Title Rare diseases : expediting treatments for patients : hearing before the Subcommittee on Children and Families of the Committee on Health, Education, Labor, and Pensions, United States Senate, One Hundred Fifteenth Congress, second session, on examining rare diseases, focusing on expediting treatments for patients, October 3, 2018.

Publication Info. Washington : U.S. Government Publishing Office, 2020.

Item Status

Description 1 online resource (iii, 40 pages).
text file
Series S. hrg. ; 115-851
United States. Congress. Senate. S. hrg. ; 115-851.
Note Access ID (govinfo): CHRG-115shrg32387.
GPO Cataloging Record Distribution Program (CRDP).
Bibliography Includes bibliographical references.
Performer Hearing witnesses: Dant, Mark, Chair, EveryLife Foundation for Rare Diseases, Louisville, KY; Patterson, Marc, M.D., Professor of Neurology, Pediatrics, and Medical Genetics, Mayo Clinic, Rochester, MN; Strupp, Michael, M.D., Professor of Neurology, University of Munich, Munich, DE; Tsang, Lincoln, F.R.Pharm.S., Partner, Arnold and Porter, Kaye, Scholer, LLP, London, England, UK; Factor, Mallory, Founder and CEO, IntraBio, Inc., Oxford, England, UK.
Event Date of hearing: 2018-10-03.
Subject Rare diseases -- Treatment.
Rare diseases.
Orphan drugs.
Orphan drugs.
Drug approval.
Drug approval.
United States. Food and Drug Administration -- Rules and practice.
United States. Food and Drug Administration.
Parliamentary practice.
Genre/Form Legislative hearings.
Rules.
Legislative hearings.
Other Form: Microfiche version: United States. Congress. Senate. Committee on Health, Education, Labor, and Pensions. Subcommittee on Children and Families. Rare diseases (OCoLC)1294302094
Print version: United States. Congress. Senate. Committee on Health, Education, Labor, and Pensions. Subcommittee on Children and Families. Rare diseases (DLC) 2020419206 (OCoLC)1202808473
Standard No. 32-387 (GPO jacket number)
Gpo Item No. 1043-C (online)
Sudoc No. Y 4.L 11/4:S.HRG.115-851