| Description |
1 online resource (248 pages). |
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text file |
| Series |
Cambridge Bioethics and Law ; v. 16
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Cambridge bioethics and law.
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| Contents |
Cover; Genetic Data and the Law; Series; Title; Copyright; Dedication; Contents; Preface; 1 Introduction; Genetic data; The legal protection of genetic privacy; Assessing privacy protection; Public cf. private interest; Structure; Part I: The context; 2 Privacy; What is privacy?; Privacy as control; Value and control; Privacy as a norm of exclusivity; Norms and the transactional variable; Norms, transactions and the relational variable; Privacy, public interest and legitimacy; Public expectations and genetic research; Reflection; 3 Genetic data; Data and information. |
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Genetic data cf. genetic informationWhat is genetic information?; What cf. whether; Genetic information as an indicator; A composite understanding of genetic information; Private vs. observable cf. sensitive vs. non-sensitive; Personal genetic information vs. human genetic information; Changing access to genetic information; Reflection; 4 The law; SECTION I A LEGAL CONCEPT OF PRIVACY; Universal Declaration of Human Rights; The European Convention for the Protection of Human Rights and Fundamental Freedoms; Research and proportionate interference; Research and data protection. |
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The Data Protection Directive (95/46/EC)What is personal data?; Multiple data subjects and biological samples; Personal data and norms of exclusivity; Legitimate data processing; Supplementary material?; Other principles of data protection; Rights to access and to object; SECTION I I INTERNATIONAL LEGAL STANDARDS APPLICABLE SPECIFICALLY TO GENETIC DATA; Transactional variable; Relational variable; Reflections; Part II: The critique; 5 Data in common; Terminology; Family members (and other affected individuals); Structure; SECTION I DATA SUBJECTS AND GENETIC DATA IN COMMON. |
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Defining data subjectsCan data 'relate to' more than one individual?; Can genetic data 'relate to' more than one individual?; SECTION I I WHY MIGHT RECOGNISING MULTIPLE (GENETIC) DATA SUBJECTS BE PROBLEMATIC?; English law and secondary data subjects; Durant v. FSA [2003]; Passing the threshold; Problems with not recognising multiple data subjects; Inadequate protection; Alternative responses; SECTION I I I ADDRESSING THE BALANCE; How should data be understood to 'relate to' another individual in order for that data to be personal data?; Expanding the exemptions; 6 Anonymity; Structure. |
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SECTION I TERMINOLOGYSECTION I I DATA PROTECTION AND ANONYMOUS DATA; The burden of compliance and the UK implementation of identifiability; Can a data controller meet responsibilities to an anonymous data subject?; Notification; Access and objection; Reasons to protect anonymous data; Zorro's mask and re-identification; Fresh association; Anonymity and failure to protect group interests; Private data cf. identifiable data; Are we overprotecting identifiability?; Reflection; 7 Human tissue; Structure; SECTION I HUMAN BIOLOGICAL MATERIAL, SAMPLES, DATA AND INFORMATION. |
| Note |
Section i i personal data, biological samples and normative expectations. |
| Summary |
Mark Taylor demonstrates how research using genetic data can be reconciled with proper privacy protection. |
| Bibliography |
Includes bibliographical references and index. |
| Local Note |
eBooks on EBSCOhost EBSCO eBook Subscription Academic Collection - North America |
| Subject |
Medical genetics -- Law and legislation.
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Medical genetics -- Law and legislation. |
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Medical records -- Access control.
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Medical records -- Access control. |
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Genetic engineering -- Law and legislation.
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Genetic engineering -- Law and legislation. |
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Biotechnology -- Law and legislation.
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Biotechnology -- Law and legislation. |
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Human chromosome abnormalities -- Diagnosis -- Law and legislation.
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Human chromosome abnormalities -- Diagnosis -- Law and legislation. |
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Human genetics -- Government policy.
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Human genetics -- Government policy. |
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Privacy, Right of.
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Privacy, Right of. |
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Data protection -- Law and legislation.
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Data protection -- Law and legislation. |
| Genre/Form |
Electronic books.
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Electronic books.
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| Other Form: |
Print version: Taylor, Mark. Genetic Data and the Law : A Critical Perspective on Privacy Protection. Cambridge : Cambridge University Press, ©2012 9781107007116 |
| ISBN |
9781139338448 |
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1139338447 |
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1107007119 |
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9781107007116 |
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9781139336703 (electronic book) |
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1139336703 (electronic book) |
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9780511910128 (electronic book) |
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0511910126 (electronic book) |
| Standard No. |
9786613571854 |
