LEADER 00000cam a2200637Ka 4500 001 ocn769344036 003 OCoLC 005 20160527040817.1 006 m o d 007 cr |n|---||||| 008 111226s2011 enk ob 001 0 eng d 019 774293836|a817056087|a819504297|a821642070 020 9780199909742|q(electronic book) 020 0199909741|q(electronic book) 020 1283427931 020 9781283427937 020 |z9780195390384|q(hardback alkaline paper) 035 (OCoLC)769344036|z(OCoLC)774293836|z(OCoLC)817056087 |z(OCoLC)819504297|z(OCoLC)821642070 040 EBLCP|beng|epn|cEBLCP|dIDEBK|dN$T|dMERUC|dOCLCQ|dYDXCP |dOCLCQ|dOCLCO|dDEBSZ|dOCLCO|dE7B|dCDX|dOCLCO|dOCLCQ |dOCLCO 049 RIDW 050 4 QH438.7 .A26 2011 072 7 MED|x050000|2bisacsh 082 04 174.2/96042|a174.296042 090 QH438.7 .A26 2011 245 00 Achieving justice in genomic translation :|bre-thinking the pathway to benefit /|cedited by Wylie Burke [and others]. 264 1 Oxford :|bOxford University Press, USA,|c2011. 300 1 online resource (223 pages) 336 text|btxt|2rdacontent 337 computer|bc|2rdamedia 338 online resource|bcr|2rdacarrier 347 text file|2rdaft 504 Includes bibliographical references and index. 505 0 Cover; Contents; 1. Making Good on the Promise of Genetics : Justice in Translational Science; 2. The Social, Political, and Economic Underpinnings of Biomedical Research and Development: A Formidable Status Quo; 3. The Input-Output Problem: Whose DNA Do We Study, and Why Does It Matter?; 4. The Autism Genetic Resource Exchange: Changing Pace, Priorities, and Roles in Discovery Science; Commentary on the Discovery Phase of Research; 5. Early Assessment of Translational Opportunities; 6. The Power of Knowledge: How Carrier and Prenatal Screening Altered the Clinical Goals of Genetic Testing. 520 This book explores implicit choices made by researchers, policy makers, and funders regarding who benefits from society's investment in health research. The authors focus specifically on genetic research and examine whether such research tends to reduce. 588 0 Print version record. 590 eBooks on EBSCOhost|bEBSCO eBook Subscription Academic Collection - North America 650 0 Human genetics|0https://id.loc.gov/authorities/subjects/ sh85062875|xResearch|0https://id.loc.gov/authorities/ subjects/sh2002006576|xMoral and ethical aspects.|0https:/ /id.loc.gov/authorities/subjects/sh00006099 650 0 Genomics|0https://id.loc.gov/authorities/subjects/ sh2002000809|xResearch|0https://id.loc.gov/authorities/ subjects/sh2002006576|xMoral and ethical aspects.|0https:/ /id.loc.gov/authorities/subjects/sh00006099 650 0 Genetic screening|xMoral and ethical aspects.|0https:// id.loc.gov/authorities/subjects/sh2009125718 650 7 Human genetics|xResearch|xMoral and ethical aspects.|2fast |0https://id.worldcat.org/fast/963091 650 7 Human genetics.|2fast|0https://id.worldcat.org/fast/963075 650 7 Genomics.|2fast|0https://id.worldcat.org/fast/940228 650 7 Research.|2fast|0https://id.worldcat.org/fast/1095153 650 7 Genetic screening|xMoral and ethical aspects.|2fast|0https ://id.worldcat.org/fast/1766784 655 4 Electronic books. 700 1 Burke, Wylie.|0https://id.loc.gov/authorities/names/ n99803164 700 1 Edwards, Kelly A. 700 1 Goering, Sara.|0https://id.loc.gov/authorities/names/ n93114017 776 08 |iPrint version:|aBurke, Wylie.|tAchieving Justice in Genomic Translation : Re-Thinking the Pathway to Benefit. |dOxford : Oxford University Press, USA, ©2011 |z9780195390384 856 40 |uhttps://rider.idm.oclc.org/login?url=http:// search.ebscohost.com/login.aspx?direct=true&scope=site& db=nlebk&AN=414050|zOnline eBook. Access restricted to current Rider University students, faculty, and staff. 856 42 |3Instructions for reading/downloading this eBook|uhttp:// guides.rider.edu/ebooks/ebsco 901 MARCIVE 20231220 948 |d20160607|cEBSCO|tebscoebooksacademic|lridw 994 92|bRID